New, new, new…

Another beautiful spring day with a light breeze perfect for putting laundry on the line, exploring plants and of course playing in the playroom with Filbert. His growth always surprises me and most recently I feel surprised multiple times a day!

Every week it seems as though there is a theme among the team of a something new Filbert is doing. For the past week the theme has been sustained eye contacts and lots of genuinely long and deep smiles with eye contact. Many of his looks last several seconds and give you the feeling he is “reading” you.

On top of this wonderful new connectedness we are all observing, he is imitating actions, drawings and words immediately or within minutes of them being introduced. His new vocabulary includes astonishing, accurate, demolish, outstanding, distinguished, wiggly, nobly, and many others – as you can see adjectives are what we are working on:). He is making ramps with books, his legs, our legs and arms and we are showing him concrete ways of understanding the words “under” and “over” using these ramps. He learned how to play the recorder from imitating a wonderful volunteer and enjoys drumming on bongos from time to time.

His current favorite stimming activities are to draw music notes and spin objects. However, he is allowing more and more extensions to these activities when he engages us in play. We have made different size music notes, music notes with different faces, taking turns spinning things, spinning things on the same surface so they crash and many other fun extensions to his interests.

The interaction that surprised me the most of late was that he bowled with me taking turns for over 15 minutes. We took turns knocking them down and cheering and counting how many fell down. The rolling the ball was just as much fun as the emphatic high fives, foot high fives, dances and funny faces. We ended up laughing until we cried. So much fun!

Autism — creating growth in me

I took the kids to the park last weekend to enjoy the beautiful weather. A per his routine, Filbert likes to walk the perimeter of the play area anywhere from 3-15 times before engaging in playing on the equipment. However, on this occasion he insisted that I hold his hand — super sweet and social! As we are taking turns about the playground, I watch other moms with their children having interactions of a more “normal” nature and I thought to myself, “I want to be that mom”. Then I stopped myself and really non-judgmentally explored that thought.

Why do I want to be that mom? Her life is more simple than mine, her worries are different.

Do I want my life to be more “simple” or have “worries that are different”? No, not at all as, Filbert’s autism has taught me so much about myself and my need to grow.

Do I need to assume my life is hard and her’s is easy? No, neither is better than the other, they are simply different and in being so impact us and others in unique ways.

It was so great having a Son-Rise mentality and attitude to help me really understand what I believe about having my amazing Filbert. Would I change anything if I could — No. Having Filbert has only proved to enrich me life and change  my attitude and heart to become more of the person I want to be and without that I don’t know where I would be. It’s such a great integral part of my life that it would be like not having married my incredible husband — I would not be who I am today. I am so thankful for how everything has come together for me to be writing this post today as I continue to become more and more accepting and loving of myself and others leading to what I feel we are each called to do daily. Serve those we love, not out of obligation, but because we want to out of the overflow of love in our hearts. Spending time with my family is the biggest blessing I could possibly imagine and that family extends daily as we invite others to grow with us as it takes a town to raise a child:).

Poop talk…

Alright, let’s talk poop. Before having children I had no idea how much of my time would be spent on this subject, then combine that with having a severely autistic little guy and you have a whole different level of poop talk.

So, starting at what I feel is the beginning. I will disclaimer, I am merely a parent watching and learning as I make every attempt albeit with guidance to help my son and his digestive system. My son, who is soon to be 4 years old just had his first ever large, formed, properly digested stool which sank in the toilet. Currently, this rates up there with the time he took his first steps!

As a baby, he did not have any formed stools which was attributed to breast feeding, after that he had several ear infections (which had a little space between, but felt perpetual) during which he had antibiotics which gave him horrible diarrhea exploding out of his diaper well into his second year of life. His ear infections continued until a few months before he turned three, when I took him off dairy and they stopped all together. Some say this was simply a stage, but the dairy coincidence has me wondering.

Anyway, after going gluten free casein free he was not as explosive, but still again, no formed stools. After doing an elimination diet where we continually were taking out foods and re-introducing them, to test his sensitivities we were not any closer to resolving this issue. Then thankfully a friend told us about the GAPS diet.

The formed stool has taken us a looooooooooooong time to come by. We started GAPS with Filbert July 2011 and we just had our first perfect stool yesterday — May 8th, 2012. Why? Who knows exactly? My theory is that his system had so much inflammation and damage from being ill and medicated for such a large portion of his life that using food and some natural supplements to heal that would take quite a bit of time. Are we done yet? Ohhhh, no. We will continue to press forward until his stools are always formed and he is getting the nutrition his body so desperately needs.

I am so thankful that I stuck to my guns with the GAPS diet; healing takes time and during the course of the last 10 months Filbert has shown so many cognitive and sensory improvements I cannot deny it is helping, but the formed stool means we are moving in a great direction of him being able to utilize all the nutrient dense foods he is eating in a day that will progressively build his body back up to where it needs to be. Do I think this will fully reverse his autism? Not likely, but what I do know is that if his body is doing all the processes it needs to be, over time toxins will be leaving his body instead of building up in there, and he will be feeling well, therefore, operating at a different level — just like me when I feel well verses when I feel sick. Making therapy far more effective as he is more present and ready to learn.

Anyway, my conclusion as I have journeyed with my son is that poop is important. It is not something that should be loose, overly smelly, hard or floating in the toilet. A stool should be one mass, not difficult to pass and sink in the toilet. I think this is good information for any child and adult to know, because we assume what we experience most often is “normal”. If we are told it is not “normal” we then medicate instead of exploring the root of the problem. We are what we eat. I choose lots of veggies, proteins, broths and protein and the result is energy, emotional stability, clear thinking and restful sleep.

Stool info from www.gapsdiet.com below:

“Type 1 has spent the longest time in the colon and type 7 has spent the least.  Stools at the lumpy end of the scale are hard to pass and often require a lot of straining.  Stools at the loose or liquid end of the spectrum can be too easy to pass – the need to pass them is urgent and accidents can happen.  The ideal stools are types 3 and 4, especially type 4, as they are most likely to glide out without any fuss.

What type of stools are best?
•    The feeling you need to go is definite but not irresistible
•    Once you sit down on the toilet there is no delay
•    No conscious effort or straining is needed
•    The stool glides out smoothly and comfortably
•    Afterwards there is only a pleasant feeling of relief
•    All this is most likely if the stool is Bristol Stool Form Scale, type 4
*When it comes to defining the “ideal” stool, there is some debate.  For another interpretation, please view Fiber Menace.”

Let’s talk poop: Do you think your stool is normal? What do you eat? How do you feel?

May Update: 11 Months of the Son-Rise Program

New things Filbert is up to:
-Sustained eye contact to start and continue an interaction and while speaking
-Allowing lots of variations to his stims and making his own variations
-Consistently asks, “who is it?” and a few “why?” questions
-Immediate imitation of idea introduced my volunteer, many socially related
-Initiates turn taking by saying “mommy’s turn” and handing over an object
-Frequent eye contact as often as 10 times in 5 minutes at times

Some moments this month:

1. While playing today he looked at me and I said, “do you love mommy?” and he immediately replied “I love mommy (with a sparkle in this eye)”.

2. He comments consistently on his sister actions, “she’s climbing in the stroller”, “she threw the leaf”

3. While driving his cars in the playroom the volunteer put little bears in to take a ride and he immediately imitated this loading more bears in the car and driving it around.

4. Volunteer taught him to “mix” colors while drawing on the wall, and he showed me how to do it using the word “mix” and guiding my hand with his to ensure I fully understood!

5. Math lessons according to Filbert: “8 and 8, eighty-eight, 0 and 0, zerody-zero, 10 and 10, tenty-ten”.

6. He has done turn taking with “mailing” letters, spinning toys, pretending to fly like a butterfly & hop like a bunny. Enjoys the anticipation of a pretend rhino charging across the room and occasionally reciprocates as the rhino himself.

7. His drawing has extended to drawing a music staff, no music notes on it yet, just near by:).

Remember where he started 10 months ago: he was echolalic, infrequent eye contact, no functional language, sensory issues – needed deep pressure, jumping 4-6 hours a day, hardly slept, always fully clothed, chewing, whining, no initiating affection, no sharing toys, would hoard everything, no initiation of interaction, little interest in people beyond basic needs, no asking questions, no humor, rigid & ritualistic, did not share experiences with others

May Goals:

1. Encourage and model for Filbert a variety of adjectives and prepositions
2. Model, encourage and request participation in pretend social play to extend his world and conversational skills
3. Invite Filbert to play games with two rules that require turn taking

For more info on this amazing therapy go to: www.autismtreatmentcenterofamerica.org

Maximum Impact: April 2012

The Option Institute is located in the beautiful Berkshires in Sheffield, Massachuesetts. The campus itself exudes relaxation and calm. My hubby and I really enjoyed spending the week there taking a class called Maximum Impact. This course focused on taking our Son-Rise Program (therapy for our autistic son) to the next level.

Everyday was so full of great information not just for those with autistic children, but anyone. I feel recharged! Below are some of my favorite things I learned last week and I hope you find them helpful too. I highly recommend attending any program at the Option Institute or Autism Treatment Center of America — your life will never be the same!

RESDIGN MY LIFE FOR WHAT I WANT FOR MY FAMILY

No moment to wait for there is either DO or NOT DO.

Own my discomfort and explore the underlying belief

As strong to say “yes” as strong to say “no”

Do, do and do again

INTENT is super important!

DREAM BIG!!! Go for what you want, loving each moment!

Potential of Filbert is limitless

Be Present: in the playroom as if nothing else exists

Love! – Make it tangible and visible, make it obvious

Celebrate what Filbert is doing, not matter how big or small

No mistakes, just lessons

Believe you can have dreams and dream those dreams!

We are dreaming something big for Filbert – RECOVERY FROM AUTISM! I love dreaming this dream and giving him every opportunity to learn and grow through loving him and accepting him unconditionally today and everyday. So far this journey has been incredible and the more I change and learn to love and accept more the more Filbert is drawn to me. His autism has been such a blessing to our family and those taking this journey — not sure who is learning more us or him!

As a result of learning and changing last week, Filbert’s response has been talking in longer sentences, more eye contact, more laughter and upon entering the playroom yesterday he walk all the way across the room with eye contact, a huge smile on his face, put his arms up and hugged me! A spontaneous hug!! Also during our session, I was modeling conversations and for the first time ever he asked me, “how are you?”. I was so excited I replied, “I’m wonderful” and smothered him in kisses. A year ago we were told he is severely autistic and here we are today with the beginnings of conversation and outward expression of loving others. I am thrilled about what this next year will bring.

Have an incredible week!

D o n a t e